Our engaged patient community is critical for advancing research.
Research simply does not advance without patients. More and more, research and funding organizations look for active patient communities when deciding to focus on a particular disease. The gyrate atrophy community is a global group of families actively working towards a cure for ourselves and our loved ones.
When we are connected, inspired, and informed we accelerate research. We do this by:
Using our stories and voices to inspire research and bring a human face to the disease
Participating in research studies
Raising funds to catalyze research
Questions about gyrate atrophy?
PAtient and Family Stories
There are so many more stories of people affected by gyrate atrophy.
We don't know all the people affected by this disease. It is difficult to diagnose.
If you'd like to share your story here, contact us.
Join us to learn about and advocate for a cure.
Join our community for occasional research updates including opportunities to participate. The email list is the best way to stay up to date on community organizing and advocacy. If you are a patient or a loved one of someone with gyrate atrophy, join the Facebook group for patients and families.
