We Need Your Help Now!
June 2025
Dear Friends of Conquering Gyrate Atrophy,
Gene therapy and editing approaches are growing exponentially. We need to ensure these approaches are applied to gyrate atrophy and we need your help to raise $100,000 by the end of the year.
To date, Conquering Gyrate Atrophy has provided over half a million dollars to the top researchers in the world. A recent article in the Johns Hopkins magazine emphasized the importance of our patient advocacy.
We need to work faster because the vision of our loved ones continues to deteriorate every day.
What has happened with that half million dollars?
A lot.
Proof that gene therapy for gyrate atrophy works in human cell lines, see here.
Gene therapy with liver cells that fully corrects the key biochemical defects in gyrate atrophy mice, see here.
Better understanding of how gyrate atrophy is expressed in mice retina which helps us assess whether a treatment works. See the paper here.
Completed enrollment for the 1st natural history study for gyrate atrophy (GYROS) without which we can’t do clinical trials.
This work is at risk due to federal funding cuts for scientific research. We need to raise $100,000 by the end of the year in order to continue this research.
That’s a big number but we have done it before as a community and we can do it again.
How can you help?
Please donate generously - no amount is too small (or too big!)
Ask friends and family to donate by sharing your story and connection to gyrate atrophy.
If you have business connections, ask businesses to make a contribution to preventing blindness.
Contact us for other ways to help.
Thank you all for your continued support. To learn more visit us at https://www.gyrateatrophy.org/ or send an email to Info@GyrateAtrophy.org.
With hope and gratitude,
Karabi and Malay Acharya